I was having lunch in the work canteen. I have a habit of passing my hand at the back of my neck — a kind of self-massage, something I’ve always done. That’s when I felt it. A very small lump, on the left side. The right side was smooth, as it always had been. I carried on eating. Carried on chatting with my colleagues. And when lunch was over, I went back to work.
But I never stopped thinking about it. I kept touching it, wondering. Weeks passed. Then months.
By the time Christmas came, swallowing had become difficult. Not impossible — just enough to notice. I needed a sip of water to wash down every mouthful of food. In November 2006, I went to my doctor and asked for a referral to an ENT specialist.
In February 2007, my wife Harsha and I flew to India for a wedding. We didn’t know then that the referral letter had never arrived. The hospital had returned it — misdirected, undelivered, as if it had never been sent. My doctor hadn’t known either.
When I came back from India, I pushed for an earlier appointment. That’s when I found out. The doctor was not happy. Neither was I — though “not happy” doesn’t quite cover it. He examined my throat again. Felt the left tonsil with his fingers. Said it felt soft. Didn’t think it was serious. But he wrote an urgent letter himself, directly, and this time it worked. On 22nd March 2007, I walked into the ENT clinic at Wexham Park Hospital.
I had a bad feeling.
I’ve always been a man who prays. Since before Christmas, I had been asking God to give me the strength to deal with whatever He throws at me. The past few years had been tough. Harsha was not getting any better, and it had started to feel like this was simply the way the rest of our lives was going to be. Now, sitting in that waiting room, I was asking again.
The wait, though not long, seemed like forever.
I walked into the room and was welcomed by a pleasant young doctor who introduced himself as Dr Pope. No pun intended. I answered a few questions about my general health. Then he got out a throat instrument, I opened wide, and the first words I heard were: “Oh dear. Do you mind if I get a colleague to look at this?”
“No of course not,” I said. Mildly.
He came back a couple of minutes later with another pleasant doctor by the name of Dr Wood. Dr Wood followed the same procedure, then started talking in medical terms with Dr Pope. I asked them politely to explain.
Dr Pope told me that the tonsil was more of a lump in the throat and needed urgent investigation and then subsequent removal. He arranged for me to have a blood test straight away and asked me to return to the clinic afterwards for more urgent appointments. A nurse by the name of Bally was waiting for me with a sheet of paper — a couple of dates and what to do. An MRI scan in eight days’ time, followed by an appointment at King Edward Hospital, Windsor, on 2nd April.
So from the 22nd March to the 30th March — a long, anxious wait. And even longer still from then to Monday 2nd April, even though it was only a matter of three days.
30th March 2007. This is the day. This is the one that will put a stamp on the doctors’ fears and mine too.
I turned up at Wexham Park for my appointment and once again waited anxiously. I went into the room and for some unknown reason, it felt cold in there. I sat down and could see the doctor had the monitor screen open to my MRI scans. “Hello, Mr Joshi. Take a seat please.”
As I sat down, I couldn’t help but look at the monitor screen.
He did not beat about the bush. “I’m sorry to tell you that you have a type of cancer. We don’t know exactly what type and how far it has progressed. We will do some more tests immediately to determine what course to take. It looks like we have caught this early, but the tests will confirm everything. Please do not worry — you are in good hands now.”
Little did he know that I had been petrified since its first detection. I smiled and lied to him. “I’m very strong, Doctor, so I’m not worried — for me, that is.”
“Good. That’s half the battle,” he said.
1st April 2007. The previous day I had a biopsy at King Edward VIII Hospital. The nurse who did my ultrasound on the neck and took the biopsy sample said: “How long have you had this? You should have done it sooner.”
“Thanks mate. I would have, if I’d known.”
Things were moving fast now. An appointment had been made for 3rd April for a pre-assessment before the operation to remove my left tonsil on 4th April. It was also Pratibha’s birthday.
But that is not why I remember 1st April.
I feel so lonely. Not lonely for company — I had support from family, from Bipin, from people who rallied around me. But lonely in the way that only one person in a room full of people can feel lonely, when nobody in the room is carrying exactly what you are carrying.
When Harsha had the epileptic fit, I was alone at home. I had left her there while I went to get the ultrasound and biopsy. I had also just finished calling Bipin to tell him the news about my cancer. I remember I was in tears. He had offered to come down straight away, but I had refused. And then, only a few minutes after I put down the phone, Harsha was being taken by ambulance to hospital. She didn’t know anything yet.
Mitesh was working. Rakhi was at college — or so I thought. None of them could come to the hospital. I had my pre-assessment in the morning. I had no choice but to let matters take their course.
Harsha got into hospital at about 4pm. And little did I know that the cancer ward was next door to hers.
I got home so late. Exhausted — physically and mentally. I can’t remember dropping off to sleep.
I need to say something here about Rakhi. Every father who has a daughter, who has watched her struggle through her teenage years with things she couldn’t tell him, will understand what I am about to say without me saying very much at all. She was going through a crisis of her own — one that had been building long before my diagnosis, one that had its roots in the kind of company a young woman can fall into when she is not yet sure of herself. I was already being torn apart by Harsha’s illness. Then came my own.
We were close — as much as a father and daughter can be when there is already a storm inside the family home. But we were also far apart. I did not push. She did not speak. Some things are best laid to rest for now. What I will say is this: she found her way back to me. She wrote me a letter — a letter I will keep until my last day. It is too personal for these pages. But it exists. And that matters more than anything I could write here.
3rd April. My pre-op appointment was done and dusted. I knew what to expect tomorrow. Harsha was in Ward 9 West. I went to her, and she had no idea about my operation in the morning. After her mini-stroke in 2004, she had never been quite the same. She was in no state to understand or accept what was happening in our lives. I spent all the visiting time in the ward with her. All the time, I had to put on a brave face and not show the stress tearing my insides out.
4th April. I had a sleepless night and went in for the operation to remove the lump in my throat. It was a day procedure and I was back with Harsha in her ward by 12:30pm. She still had no idea. The “lump” had gone for more tests.
7th April. I was seeing the oncologist and specialist nurse for an update and a course of treatment. As I sat down, my heart was in my throat. The worried look on my face must have been so obvious.
Dr Moule, my oncologist, explained that what I had was called Hodgkin’s Disease and it was at Stage 2. That was good news. The type of cancer I had was treatable, with a 95% chance of survival. Treatment to start in ten days, on 17th April. A course of six chemotherapy sessions, followed by radiotherapy.
8th April. The course was set. I had been signed off work for six months.
Now, sitting by the bed with Harsha in her ward, I was finding it so difficult to concentrate on anything. My mind was breaking down all the information, building up possible scenarios. What if this, or what if that happens? Money was up there, top of the list. What will happen to us? The house, the mortgage, the bills, the food. So many thoughts. So many questions. And no answers. The heart was racing. Head in a spin.
And then I finally succumbed to the tiredness and dropped off to sleep in the armchair at the side of Harsha’s bed.
But despite all of it — the family rallying, Tish supportive, people I loved surrounding me — Harsha was top of the list. I was getting so desperate. How is she going to cope when I have to go for chemo? Who will look after her? That question never left me. Not once. Not through any of it.
If you have never had chemotherapy, I hope you never do. I would not wish it on my worst enemy.
It felt like ants crawling on the inside of my body. My head felt like a lead weight on my shoulders. I used to bury my face into the corner of the sofa armchair and wish for it to pass quickly. I suffered through six sessions, with re-hospitalisations when the chemo sent my temperature dangerously high. And even then — even in the armchair, even in the hospital bed — the same thought, playing on a loop. Who is going to look after Harsha?
I cried. I want to be honest about that. I cried alone, in the upstairs bathroom, where nobody could hear. That was the only place I allowed it. Then I washed my face and went back downstairs.
The radiotherapy was done in Reading, Berkshire. So that was the routine — drive there, treatment, drive back, put on the carer’s face, keep going. Harsha’s illness was such that she did not fully comprehend the scale of what was happening to us both. So I kept going.
For the radiotherapy, a mask was made of my face and neck — a silicon mesh sheet, moulded to my face and the top of my shoulders, with two holes for eyes. It was attached by wing nuts to the gurney. The radiation itself lasted no more than ten seconds. Ten seconds. It may have felt like an eternity, because of everything that came before it. Lying still. The mask bolted down. Your face screwed to a table with wing nuts, knowing there is no escape from this.
I picture it now, nineteen years later. I can see what I didn’t let myself see then. What I didn’t let myself feel. Panic. Pure panic. Pushed down, swallowed, driven home, set aside.
It took about a year and a half from diagnosis to sitting opposite Dr Moule for what I hoped would be the last time. He turned the monitor towards me to show me what had happened to the cancer.
The news was good. Very optimistic. Not completely out of the woods — I would return for tests every three months, then every six months, then yearly, until five years had passed and I could be told I was in remission. But the cancer that had started as a small lump in the back of my neck, noticed one lunchtime in a work canteen and then quietly, determinedly ignored, had been caught and treated and beaten back.
There was no one to hold my hand. There was no fanfare. No happy screams. Just a subdued atmosphere. Dr Moule was the one to wake me from my deep thoughts and solemn look — he tried to cheer me up. The nurses smiled and silently clapped.
That was it.
I was done.
This piece is the first in a series about my cancer diagnosis in 2007. The full story — the years that followed, caring for Harsha, and what happened next — continues on the My Cancer Story page.
If you or someone you know has been affected by cancer, Macmillan Cancer Support and Cancer Research UK offer information, support and helplines.